2026 GRI Virtual Conference Agenda

(All times listed are Eastern Time)

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      TIME

     Eastern Time

      AGENDA


    		 
    9:00am Simons Searchlight Update

    - Astrid Rasmussen, MD, PhD

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    9:20am-9:35am Welcome

    - Keith McArthur, Executive Director
    - Lauren Williams, Director of Family & Donor Experience
    - Quinn Pauli, PhD, Science Director
    - Brittany Schrock, Project Coordinator
    - Bruce Leuchter, President, GRIN Therapeutics

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    9:35-10:35am Keynote 1: GRISpeaks

    Moderator:
    - Dr. Kristen Park, Prof. of Pediatrics and Neurology, Children’s Hospital Colorado

    Panel:
    - Amanda Billings, GRIK2 Mom
    - Steven Horita, GRIN2A Dad
    - Katie Gritzmacher, GRIA2 Mom
    - Ben Gritzmacher, GRIA2

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    10:35-10:40am BREAK

     
    10:40-11:40am BREAKOUT SESSION #1:


    Living GRI: Behavior Management & Safety

    Moderator:
    - Brianna Kupras, CureGRIN Board Member

    Participants:
    - Daniel NoackLeSage, M.A., BCBA, LBA Under The Oak Psychological Assessment, Treatment, and Consultation
    - Patty Sanders, GRIA3 Mom

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    Learning GRI: Rethinking Iglurs (Expert level)

    Moderator:
    - Quinn Pauli, PhD, Science Director

    Participants:
    - Dr. Derek Bowie. Professor, Department of Pharmacology & Therapeutics, McGill University; co-Director, Cell Information Systems
    - Dr. Karen Zito, Professor of Neurobiology, Physiology and Behavior, UC Davis Center for Neuroscience

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    11:40-11:45am BREAK

     
    11:45am-1:10pm Keynote 2: Clinical Trials Update; Phase 3 Breakthroughs

    Moderator:
    - Keith McArthur, Executive Director

    Panel:
    - Anne-Marie Li-Kwai-Cheung, Chief Commercial Officer, GRIN Therapeutics
    - Hillary Savoie, Director of Community Engagement & Communication, GRIN Therapeutics
    - Raquel Miralles, Clinical and Medical Science Liaison, Praxis Precision Medicines, Inc.
    - Amy Lin, Medical Affairs Neuro rare III, Lundbeck

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    1:10-1:15pm BREAK

     
    1:15-2:15pm BREAKOUT SESSION #2:


    Living GRI: Transitioning to Adulthood

    Moderator:
    - Brittany Schrock, Project Coordinator

    Participants:
    - Felicia Agbanyo, Residential Supervisor with the Department of Developmental Services, State of Massachusetts
    - David Downing, GRIN1 Dad

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    Learning GRI: ASOs/Genetic Therapies (Intermediate Level)

    Moderator:
    - Keith McArthur, Executive Director

    Participants:
    - Dr. Amy Ramsey, Associate Professor, Department of Pharmacology and Toxicology, University of Toronto)
    - Dr. Geoff Swanson, Professor and Vice Chair, Department of Pharmacology, Northwestern University Feinberg School of Medicine
    - Dr. Richard Huganir, Bloomberg Distinguished Professor & Director, Department of Neuroscience, Johns Hopkins University School of Medicine

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    2:15-2:20pm BREAK

     
    2:20-3:05pm Keynote 3: How to of Hope Part II - Guide to treating and curing GRI Disorders and Census Update

    - Keith McArthur, Executive Director
    - Quinn Pauli, PhD, Science Director

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    3:05-3:10pm BREAK

     
    3:10-4:00pm BREAKOUT SESSION #3:


    MAPS: Taking an Active Role in Your Child’s Educational & Life Planning

    Moderator:
    - Lauren Williams, Director of Family & Donor Experience

    Participants:
    - Rachel Vella, GRIN2a Mom, Special Education Teacher

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    Learning GRI - Functional Analysis Panel (Intermediate Level)

    Moderator:
    - Quinn Pauli, PhD, Science Director

    Participants:
    - Dr. Steve Traynelis, Professor, Department of Pharmacology and Chemical Biology, Emory University School of Medicine
    - Dr. Ian Coombs, Experimental Officer & Lecturer, Department of Pharmacology, University College London
    - Dr. Lonnie Wollmuth, Professor, Department of Neurobiology and Behavior, Stony Brook University

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    4:00-4:10pm Closing Remarks

    - Keith McArthur, Executive Director
    - Lauren Williams, Director of Family & Donor Experience
    - Quinn Pauli, PhD, Science Director
    - Brittany Schrock, Project Coordinator

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    4:10-4:45pm NETWORKING SESSIONS:


    Families, Clinicians, & Researchers Networking Session

    Moderator:
    - Sarah Johnson, CureGRIN Ambassador

    Not Recorded



    Sibling Networking

    Moderators:
    - Jackie Coleman, GRIN2a Mom (Sibling Networking Youth ages 5-11)
    - John Coleman, GRIN2A Brother (Sibling Networking Youth ages 5-11)
    - Sonny Mullen, GRIN1 Sister (Young Adult ages 12-above

    Not Recorded

     
    4:45pm ADJOURN