2024 GRI Virtual Conference Agenda

(All times listed are Eastern Time)

  •   TIME

     Eastern Time

      SESSION

     (Zoom Meetings)    		 
    8:30-9:30am NETWORKING LOUNGE
    Connect with other conference attendees in the lounge before the conference begins.
    - Presented by GRIN Therapeutics

    Lounge is Closed

     
    9:30-10:00am Welcome and Update on the Search for Treatments and Cures
    • Keith McArthur, CureGRIN Foundation

    Watch Video

     
    10:00-11:00am GRISpeaks: GRI families share their experiences
    • Kristina McKean (GRIN1)
     • Patty Sanders (GRIA3)
     • Laura Williams (GRIN1)
     • Moderated by Denise Rehner, CureGRIN Foundation

    Watch Video

     
    11:00-11:05am BREAK

     
    11:05am-12:05pm BREAKOUT SESSION 1:

    Neurostorms: Autonomic Dysfunction and Paroxysmal Sympathetic Hyperactivity
    - Presented by GRIN Therapeutics
    • Dr. Keith Coffman, Children’s Mercy Hospital, Kansas City, Missouri
     • Moderated by Keith McArthur, CureGRIN Foundation

    Watch Video

     

    Research Talks: Brain Donation and Mortality Study
    • Dr. Carolyn Komich Hare, Autism BrainNet’s Clinical Director, Simons Foundation
     • Meagan Hutchinson, Research Coordinator, CureGRIN Foundation

    Watch Video

     
    12:05-12:10pm BREAK

     
    12:10-1:10pm BREAKOUT SESSION 2:

    GRI Animal Models and Gene Therapy
    • Dr. Amy Ramsey, University of Toronto
     • Dr. Wayne Frankel, Columbia University

    Watch Video

     

    GRI Medicine Cabinet and Therapies
    • Dr. Lisa Belderes, Megan Harrison, and Kate Yates Carilion Children's Pediatric Therapy
     • Dr. Kristen Park, MD Children’s Hospital Colorado

    Watch Video

     
    1:10-1:15pm BREAK

     
    1:15-2:15pm BREAKOUT SESSION 3:

    Insights from GRI Clinical Trials
    • Dr. Michael Panzara , Chief Medical Officer, Neurvati Neuroscience (GRIN Therapeutics)
     • Dr. Ángeles García-Cazorla, Children’s Hospital in Barcelona

    Watch Video

     

    Family Talks: Advocacy and Fundraising
    • Dr. Danielle Boyce, Tufts University Biomedical Health Data Science Collaborative (BHDSC) and Johns Hopkins University School of Medicine Faculty

    Watch Video

     
    2:15-2:20pm BREAK

     
    2:20-3:20pm Keynote 2: Registries and GRI disorder phenotypes
    - Presented by GRIN Therapeutics
    • Dr. Tim Benke,Children’s Hospital of Colorado
     • Dr. Wendy Chung, Chief of Pediatrics at Boston Children’s Hospital
     • Dr. Allan Bayat, Filadelfia Epilepsy Hospital in Denmark

    Watch Video

     
    3:20-3:25pm BREAK

     
    3:25-4:50pm Keynote 3: Research Update on CureGRIN-funded Projects
    • Dr. Dennis Lal, UTHealth Houston
     • Dr. Steve Traynelis, CFERV at Emory University
     • Dr. Wayne Frankel, Columbia University
     • Dr. Tristan Sands, Columbia University
     • Dr. Amy Ramsey, University of Toronto
     • Dr. Maggie Kalev, University of Auckland
     • Dr. Derek Bowie, McGill University
     • Dr. Ian Coombs, University College London
     • Moderated by Meagan Hutchinson, CureGRIN Foundation

    Watch Video

     
    4:50-5:30pm Ask Me Anything
    • Dr. Jennifer Bain, Columbia University Irving Medical Center
     • Dr. Keith Coffman, Children’s Mercy Hospital, Kansas City, Missouri
     • Dr. Ian Coombs, University College London
     • Dr. Johannes Lemke, University of Leipzig, Germany

    Watch Video

     
    5:30-6:00pm GRI Patient Impact Awards & Closing Remarks
    • Keith McArthur, CureGRIN Foundation

    Watch Video